Opportunity Information: Apply for CDC RFA DP 23 0006

The Sudden Unexpected Infant Death (SUID) and Sudden Death in the Young (SDY) Case Registry grant opportunity (CDC RFA DP 23 0006) is a CDC-funded cooperative agreement intended to strengthen how states, jurisdictions, or multi-jurisdictional partnerships identify, review, and track sudden and unexpected deaths in infants and young people. The main purpose is to improve the quality, consistency, and completeness of fatality data so communities can better understand how often these deaths occur, which groups are most affected, what risk factors are showing up in case reviews, and what prevention actions are most likely to reduce future deaths, including actions specifically aimed at reducing inequities.

Funded recipients are expected to coordinate and operate a registry effort that captures all resident deaths that meet the program definitions, then route those cases through a structured Child Death Review (CDR) process. The opportunity is organized around multiple components. Component A focuses on identifying and reviewing sudden and unexpected infant deaths among residents. Component B expands to sudden deaths among infants and children (often described in this program as SDY-related case registry work). Across these components, the work involves finding eligible deaths, ensuring case abstraction is done thoroughly, and standardizing information gathered from multiple systems involved in a death investigation (such as medical examiner or coroner findings, law enforcement reports, autopsy results when available, death certificates, scene investigation details, and relevant clinical history).

A core deliverable is data entry and management using the National Fatality Review Case Reporting System (NFR-CRS). Recipients compile case information from the CDR process and enter it into this national system so the data can be used both locally and nationally in a comparable way. The registry is not just a collection exercise; it is designed to support analysis that can translate into prevention. Recipients analyze the data to calculate incidence rates, monitor trends, and identify disparities between subpopulations, including differences that may be associated with race, ethnicity, geography, socioeconomic conditions, or other relevant factors. The expectation is that these findings will be used to inform practical, evidence-informed prevention activities and to guide decision-making for public health and partner agencies.

In addition to the surveillance and review infrastructure, the opportunity includes funding for SUID prevention strategy development (Component C). This prevention work is meant to be driven by the recipient's own registry data and aligned with American Academy of Pediatrics guidance, which is commonly used as a foundation for safe sleep and related infant care recommendations. The intent is to help recipients move beyond counting cases into implementing and refining targeted prevention approaches, especially in communities experiencing higher risk or persistent disparities. This could include improving the way safe sleep guidance is communicated and adopted, strengthening partnerships with healthcare and community organizations, and using local findings to tailor interventions rather than relying only on broad, one-size-fits-all messaging.

Administratively, this is a discretionary funding opportunity administered by the Department of Health and Human Services through the CDC (NCCDPHP) and uses a cooperative agreement model, meaning CDC typically has substantial involvement through collaboration, guidance, and shared expectations about implementation rather than acting as a hands-off funder. The listing indicates an expected 33 awards and shows an award ceiling of 0, which generally signals that the exact maximum may not be stated in the summary field and would need to be confirmed in the full notice. The original posting shows a creation date of January 17, 2023, with an original closing date of March 18, 2023, and electronic submissions due by 11:59 pm ET on the deadline date.

Eligibility is broad and includes many types of entities that could realistically coordinate a statewide or regional registry effort. Eligible applicants include state, county, city or township, and special district governments; independent school districts; public and private institutions of higher education; federally recognized tribal governments and other tribal organizations; public housing/Indian housing authorities; nonprofit organizations with or without 501(c)(3) status; for-profit organizations other than small businesses; small businesses; and other entities as clarified in the full notice. This wide eligibility reflects the fact that CDR and fatality review infrastructure can be housed in different places depending on the state or jurisdiction, such as a health department, a university partner, a nonprofit coordinating body, or a designated multi-agency coalition.

Overall, the opportunity funds an end-to-end system that starts with complete case identification, moves through multidisciplinary child death review, standardizes and submits the data into a national reporting platform, and then uses that information to measure burden, detect inequities, and drive prevention strategies. The practical goal is to strengthen the evidence base for preventing SUID and SDY, improve consistency in how deaths are reviewed and classified, and ensure that prevention actions are informed by the realities found in local case data rather than assumptions.

  • The Department of Health and Human Services, Centers for Disease Control - NCCDPHP in the health sector is offering a public funding opportunity titled "The Sudden Unexpected Infant Death (SUID) and Sudden Death in the Young (SDY) Case Registry" and is now available to receive applicants.
  • Interested and eligible applicants and submit their applications by referencing the CFDA number(s): 93.946.
  • This funding opportunity was created on Jan 17, 2023.
  • Applicants must submit their applications by Mar 18, 2023 Electronically submitted applications must be submitted no later than 1159 pm ET on the listed application due date.. (Agency may still review applications by suitable applicants for the remaining/unused allocated funding in 2026.)
  • The number of recipients for this funding is limited to 33 candidate(s).
  • Eligible applicants include: State governments, County governments, City or township governments, Special district governments, Independent school districts, Public and State controlled institutions of higher education, Native American tribal governments (Federally recognized), Public housing authorities/Indian housing authorities, Native American tribal organizations (other than Federally recognized tribal governments), Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education, Nonprofits that do not have a 501(c)(3) status with the IRS, other than institutions of higher education, Private institutions of higher education, For profit organizations other than small businesses, Small businesses, Others (see text field entitled Additional Information on Eligibility for clarification), Unrestricted (i.e., open to any type of entity above), subject to any clarification in text field entitled Additional Information on Eligibility.
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Frequently Asked Questions (FAQs): SUID and SDY Case Registry (CDC RFA DP 23 0006)

What is the SUID and SDY Case Registry grant opportunity (CDC RFA DP 23 0006)?

This opportunity is a CDC-funded cooperative agreement designed to strengthen how states, jurisdictions, or multi-jurisdictional partnerships identify, review, and track Sudden Unexpected Infant Death (SUID) and Sudden Death in the Young (SDY). It focuses on improving the quality, consistency, and completeness of fatality data so communities can better understand these deaths and take more effective prevention actions, including actions aimed at reducing inequities.

What is the overall goal of the program?

The program funds an end-to-end system that starts with complete identification of eligible deaths, routes cases through a structured Child Death Review (CDR) process, standardizes information across multiple investigative and health systems, submits data into a national reporting platform, and uses findings to measure burden, detect inequities, and drive prevention strategies.

What does the cooperative agreement model mean for recipients?

This is a cooperative agreement, which generally means CDC has substantial involvement through collaboration, guidance, and shared expectations about implementation. It is not described as a hands-off funding model in the summary provided.

Who administers this funding opportunity?

It is administered by the U.S. Department of Health and Human Services through the Centers for Disease Control and Prevention (CDC), specifically within NCCDPHP as noted in the listing summary.

Who is eligible to apply?

Eligibility is broad and includes: state, county, city or township, and special district governments; independent school districts; public and private institutions of higher education; federally recognized tribal governments and other tribal organizations; public housing/Indian housing authorities; nonprofit organizations with or without 501(c)(3) status; for-profit organizations other than small businesses; small businesses; and other entities as clarified in the full notice.

Why is eligibility so broad for this program?

The summary indicates that child death review and fatality review infrastructure can be housed in different places depending on the jurisdiction (for example, a health department, a university partner, a nonprofit coordinating body, or a multi-agency coalition). The wide eligibility reflects those real-world structures.

What types of recipients is the program designed for?

The program is intended for states, jurisdictions, or multi-jurisdictional partnerships that can coordinate and operate a registry effort and ensure cases are identified, reviewed through a CDR process, abstracted thoroughly, and entered into the national reporting system.

What deaths are recipients expected to capture in the registry?

Recipients are expected to capture all resident deaths that meet the program definitions and then route those cases through a structured Child Death Review (CDR) process.

What is meant by "resident deaths" in this context?

Based on the summary provided, the registry effort is expected to capture deaths of residents that meet the program definitions. The summary does not provide additional detail about how residency is defined.

What is the Child Death Review (CDR) process and how does it fit into the program?

CDR is the structured, multidisciplinary review process used to compile and assess information about eligible deaths. In this program, cases identified by the registry are routed through CDR so information can be abstracted consistently and used for surveillance, analysis, and prevention planning.

How is the work organized within the grant?

The opportunity is organized around multiple components. Component A focuses on identifying and reviewing sudden and unexpected infant deaths among residents. Component B expands the work to sudden deaths among infants and children (described as SDY-related case registry work). Component C supports SUID prevention strategy development driven by the recipient's registry data.

What is Component A?

Component A focuses on identifying and reviewing sudden and unexpected infant deaths among residents, using the program's structured registry and CDR approach.

What is Component B?

Component B expands registry work to sudden deaths among infants and children, often described in this program summary as SDY-related case registry work.

What is Component C?

Component C provides funding for SUID prevention strategy development. The prevention work is intended to be driven by the recipient's own registry data and aligned with American Academy of Pediatrics guidance that is commonly used for safe sleep and related infant care recommendations.

What are recipients expected to do to identify eligible deaths?

Recipients are expected to find eligible deaths that meet program definitions and ensure those cases are included in the registry and routed into the structured CDR process for review and abstraction.

What does "case abstraction" mean in this program?

Case abstraction refers to compiling and documenting case information thoroughly and consistently from the CDR process and from multiple systems involved in death investigation and related records, so the information can be standardized and entered into the national reporting system.

What kinds of source information are expected to be standardized and gathered?

The summary lists several sources, including medical examiner or coroner findings, law enforcement reports, autopsy results when available, death certificates, scene investigation details, and relevant clinical history.

Is an autopsy required for cases to be included?

The summary references "autopsy results when available," which implies autopsy information is incorporated if it exists. The summary does not state that an autopsy is required for inclusion.

What is the National Fatality Review Case Reporting System (NFR-CRS)?

NFR-CRS is the national data entry and management platform identified as a core deliverable for this opportunity. Recipients compile case information from the CDR process and enter it into NFR-CRS so the data can be used locally and nationally in a comparable way.

Why does the program require data entry into NFR-CRS?

The intent is to standardize case information and enable comparable analyses across jurisdictions, supporting both local and national understanding of SUID and SDY patterns, risk factors, and prevention needs.

Is the registry only about collecting data?

No. The summary emphasizes that the registry is designed to support analysis that translates into prevention. Recipients are expected to analyze the data to calculate incidence rates, monitor trends, identify disparities, and use findings to inform evidence-informed prevention activities and decision-making.

What analyses are recipients expected to perform?

Recipients are expected to analyze registry and review data to calculate incidence rates, monitor trends over time, and identify disparities between subpopulations.

What kinds of disparities is the program focused on identifying?

The summary highlights disparities that may be associated with race, ethnicity, geography, socioeconomic conditions, or other relevant factors. A stated aim is to inform prevention actions that reduce inequities.

How should registry findings be used for prevention?

Findings are expected to inform practical, evidence-informed prevention activities and guide decision-making for public health and partner agencies. Component C specifically supports building and refining SUID prevention strategies based on the recipient's own registry data rather than relying only on broad messaging.

What prevention topics are specifically mentioned?

SUID prevention strategy development is specifically mentioned, including prevention aligned with American Academy of Pediatrics guidance used as a foundation for safe sleep and related infant care recommendations.

Does the opportunity address how to communicate prevention guidance?

Yes. The summary notes prevention efforts could include improving how safe sleep guidance is communicated and adopted, strengthening partnerships with healthcare and community organizations, and tailoring interventions using local findings.

How does the grant emphasize reducing inequities?

The program aims to identify which groups are most affected, analyze disparities across subpopulations, and support prevention actions specifically aimed at reducing inequities, particularly in communities experiencing higher risk or persistent disparities.

How many awards are expected?

The listing indicates an expected 33 awards.

What is the award ceiling for this opportunity?

The listing shows an award ceiling of 0. The summary notes this generally signals that the exact maximum may not be stated in the summary field and would need to be confirmed in the full notice.

What are the key dates mentioned in the listing?

The original posting shows a creation date of January 17, 2023, with an original closing date of March 18, 2023.

When were electronic submissions due?

Electronic submissions were due by 11:59 pm ET on the deadline date указан in the listing summary (March 18, 2023).

What is the practical outcome the program is trying to achieve?

The practical goal is to strengthen the evidence base for preventing SUID and SDY, improve consistency in how deaths are reviewed and classified, and ensure prevention actions reflect local case realities rather than assumptions.

Does the program support both local and national use of the data?

Yes. The summary states that entering data into NFR-CRS allows the information to be used both locally and nationally in a comparable way.

What kinds of organizations might house or coordinate the registry and CDR infrastructure?

The summary indicates it can be housed in different places depending on the jurisdiction, such as a health department, a university partner, a nonprofit coordinating body, or a designated multi-agency coalition.

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